It’s not death that scares me right now-
I’ve been through that for weeks
and months earlier. When you get a
terminal diagnosis it tends to be the
first and last thing that goes through
your head for days and days and days.
I spent time each day mapping
out the roads in my mind to my
funeral and beyond.
I thought about the great music that would be played at my funeral. I thought
about
how people will miss me. I thought
about all the people I love and how sad I
am to leave them. I thought about my
mom all the time. About how she was
through her illness, how she
transformed herself from being angry and
depressed to becoming a heroic woman
discovering peace and serenity and how
I hoped to be like her in that way.
I grieved in turn, for her, for me. I thought about joining her and what that
would be
like. I tried to believe that I was
not being morose, but practical and realistic
-yet doomed.
I set before me a tableau of all the people I knew who suffered with illness
and died.
(I didn’t think much about those
who did not die.)
All those I knew working at the
Hospice, and friends, and friends of friends and
all whom I read about who died of
AIDS and many, many more.
And now in reading the ALS Digest
and meeting family members of other people
with ALS, I thought of all of those
who had died or would die. It was a lot of
death.
Over and over I would cry and cry.
Letting the feelings out was good.
But thinking of death all the time, like riding a
roller coaster that never stopped,
was too much.
I struggled each day with the loss of more muscle, losing bit by bit my legs
and the
ability
to hold things in my hand. Gradually, climbing stairs was impossible,
walking with a walker was such a
challenge because of falling again and again,
and now there is no more walking in
my life.
But all the while, in those first few months, the whole nagging terror was
about death.
Now it is not death that I’m afraid of.
It is, of course, living.
Living and healing, getting better or not getting better, going on with life.
Facing the
challenges of change –the changing life around me and inside me.
The demons inside must change. The many, many demons that poke through at
every
turn, the patterns and habits of lifetimes. They come in every dimension and
nuance.
Now it’s time to face them, to coax them out gently, look at them, accept
them, work
with them, encourage change and move on. Go right by them. And go on.
The hardest thing is to not push them out of the way and down the steps
violently, but
to accept them as part of my history, part of who I have been -not that I have
to
continue in their way – but that I choose to change.
The most common for me are fear, anger, frustration. These are the bold ones.
And subtle, too. Subtle and bold. They come storming out like fire ablaze. Or
they
seep through like water finding the cracks. But change I must –and I am…growing,
healing, forgiving. I ask the angels to help me. I ask God and all Great Beings
to help
me. And the people around me, especially my wife, Ginny. I let the help and the
forgiveness in. I let the barriers weaken and the energy flow and the muscles
and mind
and heart strengthen –especially the heart.
This is the fear and the excitement that I face this morning and each
morning,
and each night. For nighttime is the
hardest time for me. It brings more
discomfort, anxiety, less sleep,–
but also the possibility for more healing.
Each night as I am laid to bed by my
loving wife, I remember to choose
healing anew, to choose new
possibilities, to think and remember forgiving and
kind and loving thoughts. Each night
I remember to ask for help.
This is my challenge.
The sun will rise again.
This is the new day.
I know it to be true.
The sun will rise tomorrow again in the sky as truly it will also rise in my
heart.
This is my challenge.
And I am thankful that I have so many loving and caring beings to help me
through it.
Blessed Be.